Information for patients and parents
Research is essential to continuously improve the health and wellbeing of children and young people. The Department of Paediatric Gastroenterology, Hepatology and Nutrition at Cambridge University Hospital Trusts (Addenbrooke’s Hospital) is one of the leading specialist centres for children with gastrointestinal diseases in the UK. As such, we are involved in the care of over 250 children affected by chronic intestinal diseases such as Crohn’s Disease and Ulcerative Colitis.
Who we are:
Over the last few years we have developed an active group of researchers, led by Consultant Matthias Zilbauer, that work together on a number of clinical and laboratory projects that involve children attending our service. These highly committed and expert researchers are all working with the aim of improving the lives of children with gastrointestinal disease.
What we do:
Over 90% of our patients are involved in our research; our aim is to offer every child and family the opportunity to take part in one of our research projects – something that may either benefit them directly, or help other children in the future. We collect the data for our projects by different methods; this can range from providing clinical information by questionnaire, to giving a small additional amount of blood during a blood test, or agreeing to a few additional biopsy samples at endoscopy.
Why it’s important:
We can use this information to develop better diagnosis and treatments for our patients. Children and families who have participated in research studies in the past, have found taking part a positive and rewarding experience. Children have taken great pride in making a contribution to improving the life of other children in the future, even if the research doesn’t directly benefit their own care.
There are many other ways you can support our research efforts.
All families involved in research receive detailed information about the aims of the research, and what exactly their participation involves. Of course taking part in any research is completely voluntary, with children and families being able to opt out at any time. All the research we undertake in our department has undergone strict review to ensure that it is safe, ethical and all researchers follow guidance for good clinical practice.
The laboratory research we do is expensive, with staff and experiments mostly funded by highly competitive grants. So we are always delighted to accept charitable donations, no matter how small, to be able to do more work on new and exciting areas of interest.
We are happy to support fund-raising events personally, to help raise awareness of these conditions and find any additional support we can for these important projects.
We are always delighted to hear about, meet or discuss any ideas that might support our research goals and/or improve the care of children with gastrointestinal disease.
If you have any questions about our research, you can approach any member of our clinical team who will be able help you.
Matthias Zilbauer (firstname.lastname@example.org) or
Robert Heuschkel (email@example.com)